As a Lakes Region family comes to terms with a terrible diagnosis for their youngest member, two Meredith Center organizations are joining forces to provide a night of support. On Saturday, Oct. 20, the Wicwas Lake Grange and the Meredith Center Free Will Baptist Church are teaming up to serve a ham and bean supper, which will be held at the Grange Hall from 5-7 p.m.
Tickets cost $10 per person, there will also be raffles of gift baskets and a 50/50 raffle. Proceeds from the event will aid the LaFavre family of Tuftonboro, who, according to Diane LaFavre of Meredith, have been living a “long nightmare” since June.
The LaFavres’ ordeal began four months ago, when Isaac, their two-year-old, developed a lazy eye. They took him to an eye care office, which referred him to a neurologist. Before they could keep that second appointment, though, Isaac’s parents, Kourtney and Thomas, noticed shallow breathing when they checked on Isaac at night. They took him to Huggins Hospital, and he was taken by helicopter to Children’s Hospital at Dartmouth.
Around Sept. 1, they started to circle in on the ultimate diagnosis: ROHHAD, an acronym that stands for rapid-onset obesity with hypothalmic dysregulation, hypoventilation and autonomic dysregulation. It is exceedingly rare, with only 100 cases reported worldwide, and there is no known cause or cure. The disease is described as “life-threatening and life-limiting.”
Those who wish to support the family but can’t attend Saturday night’s dinner may send a check, made out to the Isaac LaFavre Fund, to Meredith Village Savings Bank, PO Box 177, Meredith, NH, 03253.
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